Bibliometric analysis of psychological interventions with a randomized controlled trial in parents of children with disabilities from 1980 to 2019
Abstract
Children born with a specific disability require primary caregivers who are trained to care for and enhance their abilities. The present study is a bibliometric analysis of the publications of psychological interventions with a randomized controlled trial (RCT) that have been realized in parents of children with disabilities in the period from 1980 to 2019. As part of the search strategy, the Cochrane Library, Pubmed and Elsevier databases were used, making different combinations with the keywords "children with disabilities", "parents", "intervention" and "randomized controlled trial”. The outcomes obtained reflect that 2015 was the year with the highest scientific activity in this field, being the Research in Developmental Disabilities journal the most prominent and the Cochrane Library database the one who concentrates the largest number of articles. In addition, the investigations have been realized in Anglo-Saxon countries such as Canada and United States, with an inclination towards the build-up of articles individually and focused on disabilities such as Down Syndrome and Autism Spectrum Disorder. Regarding the characteristics of these interventions, it can be summarized that their format is group with an approximate duration of 2 hours per session, being the cognitive-behavioral approach and the behavioral control techniques the ones that stand out the most. Finally, the variable that has been more worked is effective communication and the most used statistical test to measure the effects of interventions is MANOVA.
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References
Baker, B., & Brightman, R. (1984). Training parents of retarded children: program-specific outcomes. Journal of Behavior Therapy and Experimental Psychiatry, 15(3), 255-260. doi: https://doi.org/10.1016/0005-7916(84)90034-X
Bearss, K., Johnson, C., Smith, T., Lecavalier, L., Swiezy, N., Aman, M., ... Scahill, L. (2015). Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: a randomized clinical trial. Journal of the American Medical Association, 313(15), 1524-1533. doi: https://doi.org/10.1001/jama.2015.3150
Bei, E. (2015). Efectos de la estimulación y el vínculo afectivo en el desarrollo sensorio-motor y cognitivo de los bebés no videntes [Tesis de Doctorado en Psicología] Universidad Católica Argentina. Facultad de Psicología y Psicopedagogía.
De María, P. (2015). Afrontamiento y Estilos de Crianza en Padres de niños con discapacidad. Recuperado de https://bit.ly/3dpm3Lf
Duman, N., Gokten, E., Duman, R., Duman, R., & Cevik, S. (2018). Evaluation of Depression and Anxiety Levels in Mothers of Babies' Following Due to Premature Retinopathy. Archives of Psychiatric Nursing, 32(3), 439-443. doi: https://doi.org/10.1016/j.apnu.2017.12.011
Espino, J., & Martín, A. (2014). Estudio de factores resilientes en familiares de personas con discapacidad. Revista INFAD de Psicología. International Journal of Developmental and Educational Psychology, 7(1), 407-416. doi: https://doi.org/10.17060/ijodaep.2014.n1.v7.810
Fathizadeh, N., Takfallah, L., Badrali, N., Shiran, E., Savabi, M., & Akhavan, H. (2012). Experiences of blind children caregivers. Iranian Journal of Nursing and Midwifery Research, 17(2), 143–149. Recuperado de https://www.researchgate.net/publication/247158094_Experiences_of_blind_children_caregivers
Girolametto, L. (1988). Improving the social-conversational skills of developmentally delayed children. Journal of Speech, Language, and Hearing Research, 53(2), 156-167. doi: https://doi.org/10.1044/jshd.5302.156
Hirvikoski, T. (2019). ClinicalTrials.gov. ACT -Groups for Parents to Children With Disabilities (Navigator ACT). Recuperado de: https://clinicaltrials.gov/ct2/show/NCT03830476
Kim, J. & Mahoney, G. (2005). The effects of relationship focused intervention on Korean parents and their young children with disabilities. Research in Developmental Disabilities, 26(2): 117‐30. doi: https://doi.org/10.1016/j.ridd.2004.08.001
Ledesma, J. M., & Gutiérrez, M. (2013). Más allá de la clínica. Estudios experimentales. Ensayo clínico aleatorizado. Formación Activa en Pediatría de Atención Primaria, 6(2), 123-132. Recuperado de http://archivos.fapap.es/files/639-945-RUTA/19_FAPAP2_2013_06_OK.pdf
Mahoney, G., & Perales, F. (2012). El papel de los padres de niños con síndrome de Down y otras discapacidades en la atención temprana. Revista Síndrome de Down, 29, 46-64. Recuperado de https://www.researchgate.net/publication/277264411_El_papel_de_los_padres_de_ninos_con_sindrome_de_Down_y_otras_discapacidades_en_la_atencion_temprana
Martín-Cala, M., & Tamayo-Megret, M. (2013). Funciones básicas de la familia. Reflexiones para la orientación psicológica educativa. EduSol, 13(44), 60-71. Recuperado de https://www.redalyc.org/pdf/4757/475748683007.pdf
Morales, L. C. (2016). Experiencias de padres de niños ciegos: un camino con grandes desafíos. Revista de la Universidad Industrial de Santander. Salud, 48(3), 331-340. doi: http://dx.doi.org/10.18273/revsal.v48n3-2016007
Morán, L. (2011). La práctica basada en evidencia, algunos desafíos para su integración en el currículum del pregrado de enfermería. Enfermería Universitaria, 8(4), 4-7. Recuperado de http://www.scielo.org.mx/pdf/eu/v8n4/v8n4a1.pdf
Organización Mundial de la Salud. (2011). Resumen Informe Mundial sobre la Discapacidad. Recuperado de https://www.who.int/disabilities/world_report/2011/summary_es.pdf?ua=1
Overbeek, M. M., Sterkenburg, P. S., Kef, S., & Schuengel, C. (2015). The effectiveness of VIPP-V parenting training for parents of young children with a visual or visual-and-intellectual disability: study protocol of a multicenter randomized controlled trial. Trials, 16(1), 2-11. doi: https://doi.org/10.1186/s13063-015-0916-6
Pelchat, D., Bisson, J., Ricard, N., Perreault, M., & Bouchard, J. (1989). Longitudinal effects of an early family intervention programme on the adaptation of parents of children with a disability. International Journal of Nursing Studies, 36(6), 465-477. doi: https://doi.org/10.1016/S0020-7489(99)00047-4
Salazar-Farfán, M. (2017). Padres de niños con discapacidad. Relación y diferencias entre inteligencia emocional y resiliencia. CASUS. Revista de Investigación y Casos en Salud, 2(3), 156-162. doi: https://doi.org/10.35626/casus.3.2017.50
Sánchez-Teruel, D., & Robles-Bello, M. A. (2015). Respuesta a un programa de resiliencia aplicado a padres de niños con Síndrome de Down. Universitas Psychologica, 14(2), 645-657. doi: https://doi.org/10.11144/Javeriana.upsy14-1.rpra
Seguí, J. D., Ortiz-Tallo, M., & De Diego, Y. (2008). Factores asociados al estrés del cuidador primario de niños con autismo: sobrecarga, psicopatología y estado de salud. Anales de Psicología, 24(1), 100-105. Recuperado de https://digitum.um.es/digitum/bitstream/10201/8145/1/Factores%20asociados%20al%20estres%20del%20cuidador%20primario%20de%20ninos%20con%20autismo.pdf
Sofronoff, K., Jahnel, D., & Sanders, M. (2011). Stepping Stones Triple P seminars for parents of a child with a disability: a randomized controlled trial. Research in Developmental Disabilities, 32(6), 2253-2262. doi: https://doi.org/10.1016/j.ridd.2011.07.046
Soriano, M. E., & Pons, N. (2013). Recursos percibidos y estado emocional en padres de hijos con discapacidad. Revista de Psicología de la Salud, 1(1), 84-101. doi: https://doi.org/10.21134/pssa.v1i1.375
Stuttard, L., Beresford, B., Clarke, S., Beecham, J., Todd, S., & Bromley, J. (2014). Riding the Rapids: Living with autism or disability—An evaluation of a parenting support intervention for parents of disabled children. Research in Developmental Disabilities, 35(10), 2371-2383. doi: https://doi.org/10.1016/j.ridd.2014.05.021
Suriá, R. (2013). Análisis comparativo de la fortaleza en padres de hijos con discapacidad en función de la tipología y la etapa en la que se adquiere la discapacidad. Anuario de Psicología/The UB Journal of Psychology, 43(1), 23-37. Recuperado de https://www.redalyc.org/articulo.oa?id=97027472002
Suriá, R. (2014). Análisis del empoderamiento en padres y madres de hijos con discapacidad. Boletín de Psicología, (110), 83-97. Recuperado de https://www.uv.es/seoane/boletin/previos/N110-6.pdf
