La intersección de la Bioética y el Derecho a la Discapacidad

Palabras clave: Discapacidades, Bioética, Intersección, Justicia, Discriminación, Ética del cuidado

Resumen

La intersección de la bioética y los derechos de las personas que viven con discapacidad es compleja y multifacética y toca cuestiones de autonomía, justicia, dignidad y calidad de vida. La intersección ha dado lugar a debates que se centran en la atención médica, el consentimiento informado, los exámenes genéticos y las decisiones sobre el final de la vida, con el objetivo de garantizar que las prácticas y políticas médicas respeten la dignidad y los derechos de las personas con discapacidad, al tiempo que abogan por su inclusión y trato equitativo. Utilizando el método de análisis filosófico, este estudio sostiene que integrar la ética de la atención en la atención de la discapacidad promovería un marco que desafíe las prácticas discriminatorias y mejore la participación defendiendo los valores de la diversidad y los derechos humanos en los entornos de atención médica. Este estudio concluye que la ética del cuidado busca, en última instancia, fomentar la inclusión de las personas con discapacidad en la sociedad y un enfoque ético de la atención médica para todos los individuos, independientemente de sus capacidades.

Descargas

La descarga de datos todavía no está disponible.

Citas

Accariya, Z., & Khalil, M. (2016). The socio-emotional adjustment of learning-disabled students undergoing school transitions. Creative Education, 7(01), 139. 3-455.

Asch, A. (2001). Disability, bioethics and human rights. Handbook of disability studies, 307.

Baldwin, M. L., & Johnson, W. G. (2006). A critical review of studies of discrimination against workers with disabilities. Handbook on the Economics of Discrimination, 119-160

Barclay, L. (2018). Disability with dignity: Justice, human rights and equal status. Routledge.

Becker, L. C. (2005). Reciprocity, justice, and disability. Ethics, 116(1), 9-39.

Bøttcher, L., & Dammeyer, J. (2013). Disability as a risk factor? Development of psychopathology inchildren with disabilities. Research in Developmental Disabilities, 34(10), 3607-3617.

Bowen, S. K., & Rude, H. A. (2006). Assessment and students with disabilities: Issues and challenges with educational reform. Rural Special Education Quarterly, 25(3), 24-30.

Branch Jr, W. T. (2000). The ethics of caring and medical education. Academic Medicine, 75(2), 127-132.

Burchardt T. (2004). Capabilities and disability: the capabilities framework and the social model of disability. Disability & Society, 19(7), 735-751.

Degener, T. (2016). Disability in a human rights context. Laws, 5(3), 35.

Douard, J. W. (1995). Disability and the persistence of the 'normal'. Chronic illness: From experience to policy, 154-175.

Dowse, L. (2009). 'Some people are never going to be able to do that'. Challenges for people with intellectual disability in the 21st century. Disability & Society, 24(5), 571-584

Frampton, S. B., Guastello, S., & Lepore, M. (2013). Compassion as the foundation of patient-centered care: feminist philosophy (pp. 540-555). Routledge.

Gilligan, C. (2018). Revisiting" In a Different Voice". LEARNing Landscapes, 11(2), 25-30.

Green, S., Davis, C., Karshmer, E., Marsh, P., & Straight, B. (2005). Living stigma: The impact of labeling, stereotyping, separation, status loss, and discrimination in the lives of individuals with disabilities and their families. Sociological Inquiry, 75(2), 197-215.

Groce, N. E. (2004). Adolescents and youth with disability: Issues and challenges. Asia Pacific Disability Rehabilitation Journal, 15(2), 13-32.

Hanafin, J., Shevlin, M., Kenny, M., & Neela, E. M. (2007). Including young people with disabilities: Assessment challenges in higher education. Higher education, 54, 435-448.

Held, V. (2006). The ethics of care: Personal, political, and global. Oxford University Press.

Iezzoni, L. I., & O'Day, B. (2006). More than ramps: A guide to improving health care quality and access for people with disabilities. Oxford University Press, USA.

In The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine (Vol. 48, No. 1, pp. 33-49). US: Oxford University Press.

Kayess, R., & French, P. (2008). Out of darkness into light? Introducing the Convention on the Rights of Persons with Disabilities. Human rights law review, 8(1), 1-34.

Keller, J., & Kittay, E. F. (2017). Feminist ethics of care. In The Routledge companion

King, N. M., Henderson, G. E., & Churchill, L. R. (2022). Bioethics reenvisioned: A path toward health justice. UNC Press Books.

Kittay, E. F. (2011). The ethics of care, dependence, and disability. Ratio juris, 24(1), 49-58.

Kittay, E. F. (2019). Love's labor: Essays on women, equality and dependency. Routledge.

Krahn, G. L., Walker, D. K., & Correa-De-Araujo, R. (2015). Persons with disabilities as an unrecognized health disparity population. American journal of public health, 105(S2), S198 S206.

Laugier, S. (2015). The Ethics of Care as a Politics of the Ordinary. New Literary History, 46(2), 217-240.

Mannan, H., MacLachlan, M., McVeigh, J., & EquitAble Consortium. (2012). Core concepts of human rights and inclusion of vulnerable groups in the United Nations Convention on thrights of persons with disabilities. Alter, 6(3), 159-177.

Mitchell, P., Cribb, A., & Entwistle, V. (2023, February). Patient safety and the question of dignitary harms.

Mitra, S. (2017). Disability, health and human development. Springer Nature.

Morris, P. M. (2002). The capabilities perspective: A framework for social justice. Families in Society, 83(4), 365-373.

Morris, Z. A., McGarity, S. V., Goodman, N., & Zaidi, A. (2022). The extra costs associated with living with a disability in the United States. Journal of Disability Policy Studies, 33(3), 158-167.

Noddings, N. (1986). Caring: A feminine approach to ethics and moral education. Legal Evolution (pp. 460-480). Edward Elgar Publishing.

Oliver, M. (2017). Defining impairment and disability: Issues at stake. In Disability and equality law (pp. 3-18). Routledge.

Ortoleva, S. (2010). Inaccessible justice: Human rights, persons with disabilities and the legal system. ILSA J. Int'l & Comp. L., 17, 281.

Pullin, G. (2018). Supernormal design for extraordinary bodies: A design manifesto In Manifestos for the future of critical disability studies (pp. 166-176). Routledge.

Rackley, E. (2006). From Arachne to Charlotte: an imaginative revisiting of Gilligan's in a different voice.

Rogers, C. (2007). Disabling a family? Emotional dilemmas experienced in becoming a parent of a child with learning disabilities. British Journal of Special Education, 34(3), 136-143.

Serpe, A. (2024). Ethics of care: Its evolution and significance for law. In the Research Handbook on

Smith, M., Manduchi, B., Burke, É., Carroll, R., McCallion, P., & McCarron, M. (2020). Communication difficulties in adults with Intellectual Disability: Results from a national cross-sectional study. Research in developmental disabilities, 97, 103557.

Sulmasy, D. P. (2008). Dignity and bioethics: history, theory, and selected applications. Human dignityand bioethics, 1, 469-501.

Thomas, C. (1999). Female forms: Experiencing and understanding disability. McGraw-Hill Education (UK).

Weisstub, D. N., Pintos, G. D., & Rendtorff, J. D. (2008). The limitations and accomplishments of autonomy as a basic principle in bioethics and biolaw. Autonomy and human rights in health care:An international perspective, 75-87.

Wm. & Mary J. Women & L., 13, 751. the importance of compassion in action. Journal of comparative effectiveness research, 2(5), 44

Wright, R. W. (1999). Principles of justice. Notre Dame L. Rev., 75, 1859.

Publicado
2024-07-05
Tipo de manuscrito
Artículos